RECENT EVIDENCE REGARDING FAMILY-CENTRED EMPOWERMENT IN IMPROVING QUALITY OF LIFE AND TREATMENT OUTCOMES AMONG ASIAN AND AFRICAN CHILDREN WITH CHRONIC DISEASES: A SCOPING REVIEW

Received 2023-04-03; Accepted 2023-06-07; Published 2024-01-02

Authors

  • Aep Maulid Mulyana Nursing Internship Program, Faculty of Nursing, Universitas Padjadjaran, Sumedang 45363, West Java, Indonesia.
  • Windy Rakhmawati Department of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang 45363, West Java, Indonesia.
  • Fanny Adistie School of Nursing and Midwifery, University of Birmingham, Birmingham B15 2TT, United Kingdom.
  • Sidik Maulana Master of Nursing Program, Faculty of Nursing, Universitas Padjadjaran, Sumedang 45363, West Java, Indonesia.

DOI:

https://doi.org/10.22452/jummec.vol27no1.2

Keywords:

Children, Chronic disease, Family, Family-centered empowerment, Quality of life

Abstract

Chronic diseases directly impact children’s physical, psychological, and social health, determining their quality of life (QoL). Family support is essential for children with chronic diseases, and family-centred empowerment (FCE) programs may improve treatment outcomes and QoL. Using a scoping review, this study aimed to investigate the effectiveness of implementing FCE to improve QoL and other treatment outcomes among children with chronic diseases. The study followed the Arksey and O’Malley’s framework (2005) and the Preferred Reporting Items for Systematic Review and Meta-analysis (PRISMA) for Scoping Reviews checklist. Studies were systematically searched on PubMed, CINAHL, ScienceDirect, and DOAJ. The quality of the included studies was assessed using the Joanna
Briggs Institute appraisal checklist for randomized controlled trials and quasi-experimental studies. The scoping review included 20 studies from the 4,380 retrieved in the initial search. The studies reported that FCE effectively improved QoL, and the physical, emotional, social, educational, and clinical outcomes among children aged 2–20 years suffering from chronic haematological, respiratory, renal, neurological, hepatological, and neurobehavioral disorders. Overall, FCE is a potentially effective, sustainable model for improving QoL among children with chronic diseases.

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Published

2024-01-02

Issue

Section

Research article