EXPLORING PSYCHOLOGICAL RESPONSES TO THE STRESSOR OF MUSCULAR DYSTROPHY PATIENTS IN MALAYSIA: A QUALITATIVE STUDY

Received 2022-01-15; Accepted 2022-08-11; Published 2022-12-31

Authors

  • Elna Herawati Che Ismail Perdana Centre, Faculty of Technology & Informatics Razak, Universiti Teknologi Malaysia, Malaysia.
  • Nooraini Othman Perdana Centre, Faculty of Technology & Informatics Razak, Universiti Teknologi Malaysia, Malaysia.
  • Mohd Afifuddin Mohamad Department Of Community Health, Advanced Medical and Dental Institute Universiti Sains Malaysia, 13200 Kepala Batas, Pulau Pinang, Malaysia.

DOI:

https://doi.org/10.22452/jummec.sp2022no1.9

Abstract

Muscular Dystrophy is a diverse group of acquired and inherited neuromuscular conditions that cause progressive muscle wasting and weakness, with varying degrees of pain and fatigue. In some cases, cardiac and respiratory complications are involved. As a result, there is a decline in mobility which leads to slowed walking, tripping and falls with some cases requiring walking aids or wheelchairs. The aim of this study is to explore the psychological responses to the stressor of Muscular Dystrophy patients. This study employs qualitative approach which used interviews for its data collection method. The participants involved in this study are one individual with Muscular Dystrophy disease, two parents with a Muscular Dystrophy child, one Muscular Dystrophy medical specialist, two physiotherapists with Muscular Dystrophy patients and one occupational therapist with Muscular Dystrophy patients. The responses to stressor brought up by the participants are shock and denial, anxiety, anger and guilt, and depression, demotivation, and low fighting spirit. Individuals with Muscular Dystrophy and their parents respond negatively to Muscular Dystrophy disease.

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Published

2022-12-31

Issue

Special Issue 1 (2022) Combating disease: Current trends, risk, treatment and prevention

Section

Research article

License

All authors agree that the article, if editorially accepted for publication, shall be licensed under the Creative Commons Attribution License 4.0 to allow others to freely access, copy and use research provided the author is correctly attributed, unless otherwise stated. All articles are available online without charge or other barriers to access. However, anyone wishing to reproduce large quantities of an article (250+) should inform the publisher. Any opinion expressed in the articles are those of the authors and do not reflect that of the University of Malaya, 50603 Kuala Lumpur, Malaysia.